Sunday, September 29, 2013

One Day

Wow what a crazy two days.  Not crazy in that a lot happened, but crazy in the up and downs.  I know that living with transplanted lungs I have to be more precautious and diligent about getting sick and such, but when it happens it is like everything else stops.  The only thing on the mind is what do I have and how do we get rid of it now.

Wednesday, September 25, 2013

Good Times

That last ten days have not been too eventful, but there are a few things to report and talk about.  I want to start by explaining the picture of my fingernail.  The last couple days I have noticed how there is a dip in the nail and how it is growing back straighter.  As you can see in the picture the nail really curves and points down.  Also the side of the nail bed goes back pretty far on my thumb.  I have had clubbing in my nails for as long as I can remember.  Over the last few years however they have gotten significantly worse.  I would see the dip in my nail and the new nail coming in would be even more curved.

Sunday, September 15, 2013

Wind Beneath My Wings

Yesterday was Wing Flight of Hope’s big fundraiser.  The title of the blog is the song they use on their website so I thought it would be fitting.  They have a large chicken barbecue every year.  It also included Chinese and Silent Auctions, raffles and more.  There were a few thousand people that showed up to show their support.

Wednesday, September 11, 2013

Feel Good Inc.

It had been three weeks since I had been there for an appointment.  Last week I went for the bronchoscopy and the week before I was able to skip due to me doing so well.  Yesterday Gram and I headed to an appointment in NYC.  Getting around this time was much easier getting around.  I had no trouble remembering the way to go.  The week before I had been with Dad and he was taking me all over the hospital.  He had no trouble getting from one place to the next.  He was always good with directions.  I was getting better at where I needed to go, but it did help me to have a guide show me.  Lol  After going with him I had it down pat.  Grandma was still a little unsure, but I was confident.

Friday, September 6, 2013

Ho Hey

These last two days have been great!  It feels like things keep getting better.  I continue to get stronger and I am able to do more and more.  Right now I can't keep the smile off of my face because I am loving life so much right now.  I am enjoying everything I am doing and taking it all in.  It has been a while since I have been this happy.  So I will start with yesterday.

Thursday, September 5, 2013

Father and Daughter

I went to NYC with my dad for my first outpatient bronchoscopy.  My dad went with me because Jason has just gone back to work and didn’t want to take a day off already.  My dad’s work has gone above and beyond for us.  They said if he needs to take a day off to help me with something all he had to do was tell him.  We decided to drive to this one instead of fly with Wings.  I had no idea how long this procedure was going to take outpatient and I didn’t want to keep the pilot waiting.  So Dad said we would leave after he got out of work on Tuesday.

Monday, September 2, 2013

The Party's Just Begun

I had three parties this weekend three days in a row.  It was a lot of fun seeing everyone.  It was also such a welcome change that I could do it all!  Two months ago I could not do one party let alone three.  It is quite a difference being able to make plans to go somewhere instead of saying, “We will see how I feel that day.”  Being able to jump in a vehicle and go somewhere is awesome too.  I use to bring so much with me when I went anywhere.  I still have that feeling like I am forgetting something whenever I go out.  All I bring with me now is my pill case, hand sanitizer and a mask.