Benefit Information

Like I mentioned before, my family is putting together a benefit for me to help with the expenses for my upcoming double lung transplant.  This is going to help with all the expenses that go along with getting this transplant.  The surgery itself is paid for by insurance, but we are not getting any help with any other expenses.  Right now I have to keep going back for follow ups and tests every three months.  When I have the surgery itself Jason has to live there while I am in the hospital.  After I am released I am going to have to travel to NYC once a week for appointments for about 10 to 12 weeks.  We have also heard of a few additional costs that might happen.  We have planned as much as we can, but there are always things that you don't expect and we want to be as ready as possible.  We went to the bank today and opened up a separate account just for the transplant.

Drowning on Dry Land

I am not doing good heath wise today.  I started getting fevers a few days ago so I called for an oral antibiotic to try and help with it.  Also I started my nebulized Tobi yesterday.  I take that 28 days on and then 28 days off.  When I start that it really takes a toll on me, especially if I am already having a hard time.  Today is pretty bad though.  I am on oxygen and it still hurts just to breathe.  My Albuterol is not helping me either.  I can normally take a puff or two of that and feel a little better.  Today it is not doing anything for me.

Fallin' & Flyin'

These last couple weeks have been great.  I have a lot of energy, breathing decent enough to do things, and very little aches and pains.  The last time I came home I didn't get this boost in health at all so I am really happy to have it.  I don't know how long this is going to last...I am sure not long...but I will take whatever I can get.  I am trying to complete a few projects that I normally don't have the energy to do, and visit with friends and family.