The hospital stay went smoothly and I was able to come home
last Friday. I am so grateful I am able
to do that because after a little while in there I am ready to get out. If it wasn't for some of the respiratory
therapists, the procedures that go along with them and the food, I wouldn't
mind being there as much. Even if
everything was perfect in the hospital, it is still nice to be home. I am able to sleep in my own bed and be able
to actually do things. I would do the whole
thing at home except that first week I really am too sick to do it all by
myself. It is better to let my nurses
set everything up with the port and allow them to nurse me back to health those
first few days.
Doctors and medications have been my normal since I was born. My whole life I have been faced with challenges and have had to constantly adapt to them. I don't know anything different. This does not slow me down and I continue to go through my life with a positive outlook. I have a supportive family, irreplaceable friends and my amazing other half, Jason. Between them and my determined personality I am ready to take on anything that comes my way.
Friday, April 26, 2013
Wednesday, April 17, 2013
Friday, April 12, 2013
Thank You for Being a Friend
I am back in the hospital for an exacerbation. I made it a little longer than last time and this month was a good month. My coughing has gotten rougher. I have a lot of unexpected coughing fits that bring me to the verge of passing out, but I am learning to get through those. I can't complain about this because I had some energy to go out and do things with people the last few weeks. I did not have this luxury the previous month and it was horrible. My friends and family have been coming over and taking me out a lot, even if it's for a little while. It isn't always easy or go smoothly, but I am grateful they all put up with it for me. And when I am too tired and can't go out they just come over and we have a good time here.
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