Rock This Town

What a busy week!  On the 22nd we had the benefit. I spent a few days recovering from that benefit, and at the same time had my brother here with me for a few days.  I knew Friday and Saturday were going to be busy days.  I thought I knew what to expect, but more was in store for me than I knew....

We are Family

Today was a very enjoyable day!  I went over to my Aunt's house to help with some baskets for the benefit. I thought only a couple of us where going over there, but when I got there it was a full house!  A bunch of my extended cousins were over there too.  There was me, five other adults, three teenagers, and four little ones.  I was surprised, but happy to see everyone.  Some of them I hadn't seen in years.  Of the four little ones, two of them I had not met yet.  So it was really nice to see everyone.  I am finding that this is my favorite part of the benefit.  I am seeing and hearing from people I haven't talked to in years.

Proud to be an American

Hope everyone enjoyed their Fourth of July!  I personally did.  I surprisingly had a very good day yesterday.  I knew it was going to be a hot day so we came down to visit family and enjoy picnics and the fireworks.  We came very prepared.  I brought along my portable liquid oxygen and attached it to my electric wheelchair.  I also brought along my POC as a back up just in case I ran out of O2.  Luckily I ended up not needing any of it.  I got a fever half way through the day, but after I took some Motrin I felt alright.  I was comfortable for most of the day and was able to breathe.  I couldn't walk more than a couple feet without getting winded, but as long as I was in the chair I was fine.  That made for a good day and I am thankful for that.  Definitely happy I was able to enjoy the day with family.

Benefit Information

Like I mentioned before, my family is putting together a benefit for me to help with the expenses for my upcoming double lung transplant.  This is going to help with all the expenses that go along with getting this transplant.  The surgery itself is paid for by insurance, but we are not getting any help with any other expenses.  Right now I have to keep going back for follow ups and tests every three months.  When I have the surgery itself Jason has to live there while I am in the hospital.  After I am released I am going to have to travel to NYC once a week for appointments for about 10 to 12 weeks.  We have also heard of a few additional costs that might happen.  We have planned as much as we can, but there are always things that you don't expect and we want to be as ready as possible.  We went to the bank today and opened up a separate account just for the transplant.