A few updates. I was told that I am above 80% of the people on the lung transplant list nationwide. This is good news and means I am right up there for a pair of lungs. Just waiting on one that is my type and my size. Being as small as I am (4'10") it can sometimes be hard to come by lungs that will fit in my chest cavity. I just have to be patient. Physically I am starting to notice increased coughing and I had a fever yesterday...Doctors and medications have been my normal since I was born. My whole life I have been faced with challenges and have had to constantly adapt to them. I don't know anything different. This does not slow me down and I continue to go through my life with a positive outlook. I have a supportive family, irreplaceable friends and my amazing other half, Jason. Between them and my determined personality I am ready to take on anything that comes my way.
Showing posts with label CF Information. Show all posts
Showing posts with label CF Information. Show all posts
Sunday, December 30, 2012
Can't Fight Biology
A few updates. I was told that I am above 80% of the people on the lung transplant list nationwide. This is good news and means I am right up there for a pair of lungs. Just waiting on one that is my type and my size. Being as small as I am (4'10") it can sometimes be hard to come by lungs that will fit in my chest cavity. I just have to be patient. Physically I am starting to notice increased coughing and I had a fever yesterday...Tuesday, May 15, 2012
Winning a Battle, Losing a War
The bugs have won and I am back in the hospital. Well technically they lost because now a majority of them are going to die, not exactly smart these one celled organisms. I got pretty sick last week and I have been on Levoquin, but it didn't kill enough of them. I think I waited too long to call for it. Levoquin really took care of a lot of the infection, but just not enough to make me feel better. I will have to get it faster next time. One day I would be fine and then the next I wouldn't be. It was even hour to hour. I would feel horrible, then feel fine, then feel horrible again. I got tired of it and decided to just come in. Why sit and suffer for a few weeks? Yeah I am coming in more and more often, but I would rather sit in here for a week and have a couple good weeks, then sit and struggle for weeks on end to eventually end up here anyway. Plus I might as well be here when I feel like this. I can't do anything or go anywhere.
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