Things are going pretty good. I felt pretty overwhelmed when I got out of the hospital, but I am starting to get things organized again. The apartment is pretty much set up except for one room and most of my Dr's appointments are scheduled... just waiting on a few call backs. My port is healed for the most part. It is a little less than three weeks since the surgery. I don't really feel it anymore. Sometimes I feel it when I am lying on my stomach and it hurts when I hit it. Jay threw a shirt at me and it didn't hurt when the shirt hit me, but then a second after I felt the pain. It wasn't a strong pain and it didn't last long at all, I just didn't expect it. haha It is hard to explain, kind of like a delayed reaction. Like when you touch something hot for a split second, you pull away on a reflex and actually feel the heat a second later. I also hit it on the couch when I leaned forward to see my kitty Lindy. Forgot about it haha. So a little sore if I mess with it, but I don't even realize it most of the day. The one thing I am really nervous about though is the appointment to get it flushed. They are going to teach me how to put a needle into it and flush it with heparin. This needs to be done once a month to keep it from clotting. I have a cream that will numb my skin so I won't feel it, but I am still nervous about sticking a needle into myself. I am not a queasy person, I could do it to anyone else, I just don't know about myself. haha
Yesterday I got three of my tests done. They were all pretty easy. The x-ray was just a simple front and side view of my lungs. The CT scan was of my chest. I was laid down on a table and there was a large circle machine behind me that looked like a doughnut. As the table is moving all around to get images the machine was telling me when to hold my breath and then breathe again. The quantitative scan was a little more in depth. I had to get an injection of a tracer. They told me that the tracer will go through my blood vessels and they look to see where and how much blood is traveling through the lungs. I am not sure if there is more they look at or not, but that is all the tech told me. I will ask about it the next time I talk to my doctor in New York. I won't know any of the specific results of the tests until I go back up to Columbia. The next tests to be done are the DEXA scan and the UGI. So until then. :)
Doctors and medications have been my normal since I was born. My whole life I have been faced with challenges and have had to constantly adapt to them. I don't know anything different. This does not slow me down and I continue to go through my life with a positive outlook. I have a supportive family, irreplaceable friends and my amazing other half, Jason. Between them and my determined personality I am ready to take on anything that comes my way.
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