Jay and I went to NYC this week for two educational seminars. They require we attend twelve a year. Before this we have not attended any due to the timing of these and my appointments not lining up. It is not easy or cheap traveling to NYC so traveling just for a seminar is too much. Especially with my health declining. Jay had to be in NYC for work so I went with him this time in order to go to these seminars. They do two back to back so two down. I am happy we made these two because they were very informative.Doctors and medications have been my normal since I was born. My whole life I have been faced with challenges and have had to constantly adapt to them. I don't know anything different. This does not slow me down and I continue to go through my life with a positive outlook. I have a supportive family, irreplaceable friends and my amazing other half, Jason. Between them and my determined personality I am ready to take on anything that comes my way.
Friday, March 16, 2012
Educational Seminars
Jay and I went to NYC this week for two educational seminars. They require we attend twelve a year. Before this we have not attended any due to the timing of these and my appointments not lining up. It is not easy or cheap traveling to NYC so traveling just for a seminar is too much. Especially with my health declining. Jay had to be in NYC for work so I went with him this time in order to go to these seminars. They do two back to back so two down. I am happy we made these two because they were very informative.Monday, March 5, 2012
Don't Give Up
Well last week the place I worked officially shut down. I am upset and happy about it at the same time. I am upset because it was perfect for me. I didn't care for what I was doing, but it was a job that paid money and allowed me to stay at home. This is important for me because I have gotten too sick to be able to go out to a workplace every day. I am going to look and see if I can find something small at home to make some money, but I won't be too devastated if I can't. I am a little happy about it due to the fact that I can spend more time taking care of myself and maybe getting back into some of my little hobbies. Between taking care of myself and working, I didn't have the energy to do anything else. I have some moments when something is going on. For the most part though I am sitting at home doing something health related or laying around relaxing due to lack of energy. I try and do what I can when I get the chance, but I honestly can't wait until I have the energy to actually do things again.Friday, December 30, 2011
Holiday
Thursday, December 22, 2011
Enough is Enough
I went back into the hospital on December 2nd. Again I was coughing a lot, fevers all the time, not sleeping through the night. I had to go in yet again, but this last hospitalization sucked. Things were just going wrong left and right. I am use to hurdles. I come across them every day and can normally get through them. When things come at me one after another, and I am not feeling well to begin with…I do eventually break down at times.Saturday, November 26, 2011
Evaluation Complete
Update on what is going on. A few weeks ago I had an angiogram done. They needed to take measurements in my heart so they needed to send a catheter up the vein or artery in my groin until it got to my heart. Because it was an invasive procedure I had to be admitted into the hospital for the day. My grandma brought me because I was going to be under anesthesia. I was also told I would not be able to drive for two to three days after the procedure. We got there around 10:00 and I was put in a room. I was told I had to wait for the doctor to arrive and I was scheduled to have it done at 2:00. They gave me an IV and surprisingly took me down around noon. I waited in the recovery room for about an hour for the doctor and then went in. The procedure itself was not too bad. They gave me a little bit of a sedative and a local where they put the needle in my groin so I felt minimal pain. The doctor talked to me the whole time and was great. He was making jokes with me and told me he was going to bill me for all the educational information he was giving me. I was asking about everything. I wanted to know what he was doing and why he was doing it. I can't really relay much of it back because to be honest a lot of it is a blur to me. I remember a few things he said to me and I remember talking to him, but I don't remember much of the context. Those drugs can really mess with you. lolThursday, October 20, 2011
Get Busy Living or Get Busy Dying
Since I have been off the antibiotics I have been feeling relatively good. The first couple days after I got home I was still getting winded easily. A couple days ago though I have been noticing an increase in my energy. I am doing my best to keep myself as active as possible without over doing it. It feels great to be able to do things. Today I even had energy to do some cleaning in the second bedroom. We still have a few boxes that we never unpacked so I decided to tackle some of that while I had the ambition. lol Hopefully this lasts for a little while.
Monday, October 10, 2011
The Other Side of This Life
On September 29th I had my orientation with Roswell and then went back into the hospital for IV meds right after. I was having a very hard time breathing and needing oxygen all day long. Even with the oxygen on I couldn't walk ten feet without becoming winded. Thankfully I was able to get through the orientation and that went good. There was about twenty of us and we all sat through a slide show and learned what was expected of us as volunteers. We were all given a health assessment that we had to fill out. One of the things on the list was getting two PPD's. I had one done earlier in September so all I had to do was get one more and have my doctor fill out the form.
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