A few updates. I was told that I am above 80% of the people on the lung transplant list nationwide. This is good news and means I am right up there for a pair of lungs. Just waiting on one that is my type and my size. Being as small as I am (4'10") it can sometimes be hard to come by lungs that will fit in my chest cavity. I just have to be patient. Physically I am starting to notice increased coughing and I had a fever yesterday...
Doctors and medications have been my normal since I was born. My whole life I have been faced with challenges and have had to constantly adapt to them. I don't know anything different. This does not slow me down and I continue to go through my life with a positive outlook. I have a supportive family, irreplaceable friends and my amazing other half, Jason. Between them and my determined personality I am ready to take on anything that comes my way.
Sunday, December 30, 2012
Wednesday, December 26, 2012
Merry Christmas All
I hope everyone enjoyed their holiday. I was able to enjoy most of Christmas and the few weeks before hand. It was a good time to go into the hospital and still be able to get out and enjoy the season. My health did limit what I was able to do this year, but I did whatever my body would let me. I took things easy and for the most part it was nice.
Wednesday, December 5, 2012
With a Little Help from My Friends
Well I am back in the hospital. No real surprise there. I came in Friday the 30th. It seems like I end up in here every 4-6 weeks. This was a little early but I was struggling to sleep through the night and breathing was getting harder and harder. I also didn't want to wait and come in as bad as I was when I came in last time. That was extremely uncomfortable. This hospitalization has been much more pleasant than the last one. I had a few rough moments and nights. That is expected… I am in the hospital....
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