Up, Up and Away

Wings Flight of Hope is the organization I am set up with to take me for my transplant.  I assumed I wouldn't talk to them until I got needed them to fly me for the actual procedure.  Well shortly after my benefit my mom got a phone call from man named Joe.  He runs the organization and heard about my benefit.  He wanted to let us know that they would take me to and from my doctor’s appointments in NYC.  I was so happy to hear this because with the increase in oxygen use, traveling is getting more and more difficult.  I called them back and I have my first flight scheduled with them on October 19^th!  

Rock This Town

What a busy week!  On the 22nd we had the benefit. I spent a few days recovering from that benefit, and at the same time had my brother here with me for a few days.  I knew Friday and Saturday were going to be busy days.  I thought I knew what to expect, but more was in store for me than I knew....

The Motivation Proclamation

I was admitted into the hospital on Monday the 10th.  I am starting to notice a change in how I feel, but it is going slow and I am still a little out of it.  I would have updated sooner, but I have been so tired and didn't have the motivation to do much at all.  To be honest I am still having a little bit of trouble with getting myself to do anything.  I am tired, I am winded very easily and the motivation is just not there.  It is weird though because I am getting antsy and I want to do something, I just can't think of anything I feel like doing.  Interesting dilemma right?  Before I came in I was thinking about getting everything together for the scrapbook I am working on and bringing it with me.  I am slightly happy that I didn't bring it with me because it would just be sitting on the table untouched and then I would have been mad at myself.  It has just been one of those weeks and I am happy it is almost over....

Rollercoaster

I feel like I am on a roller coaster ride.  My health is up and down, up and down.  Not just day to day either.  I can be fine one hour, then feel horrible the next, then fine again.  It is extremely frustrating.  It makes it even harder to plan and do anything.  I know all about day to day, but seriously!?