No Rest for the Weary

A lot has happened over the last week between moving and recovering.  Friday I had the port inserted into my chest. The surgery wasn't bad at all. I honestly don't remember most of it. He told me what he was about to do right at the beginning and then the next thing I remember was him saying, "She is done. Just have to clean it up a little bit." During the week the surgeons told me "This is just a minor surgery", "You might feel sore or have some discomfort", "You can go back to regular activities in 24 hours". Umm...not quite. I woke up and was fine while the drugs were still in effect, but once they wore off I definitely felt it. My nurse got me a lortab, but even with that I was having a hard time sitting up to eat. So Friday I just laid in the bed unable to do much. As long as I didn't move it wasn't too bad. The worst part of the whole thing was when I was coughing. Right after the surgery when everything started breaking up...that was the worst. I really wanted to go home on Friday because I wanted to help Jason pack up the last room, but that was not a possibility. He was a little mad that I got the surgery the day before we were planning on moving, but the surgeons told me I would be fine and I really wanted to get it done this admission. If I had waited I would of had to get another picc line my next admission and then get it done. As inconvenient as it was, I think I made the right decision.

Scars and Souvenirs

Over the last couple days I have been talking to my doctor and we both agreed that the port is the best option for me.  On top of the things that I mentioned in my last post, I was told that after so many of them I can become prone to blood clots in my arms.  So to prevent the pain of placing a picc line every three months and the clots in the future I am getting this access port.  Once it is in and healed it will be like it is not even there.  It is under the skin so it is not exposed. I was told that I won't even feel it in there. All the maintenance that is needed with this port is that is needs to be flushed out with saline and Heparin once a month. This is done with a needle and flush. I won't even feel when this is accessed because I am given Lidocaine cream to numb the skin beforehand.

Penthouse suite 1011

I was admitted into the hospital on Thursday.  I really didn't want to come back in already. I was just in from April 22nd to 29th and then was home on IV's for a week.  My hospital stays are becoming closer and closer together.  As much as I don't want to be here right now I physically didn't have a choice.  I was really having a hard time breathing, I was coughing bad, and had fevers.

New York, New York

On June 30th Jay and I headed for NYC.  We had the hotel booked for two nights, a babysitter for Lindy (my kitty), pop and snacks in the car, the paperwork for the doctor and all of our luggage.  Traveling with CF is not an easy thing because we can't exactly pack lightly.  On top of the normal stuff people take with them on trips, I have to bring my vest, nebulizer, all my meds and my oxygen concentrator.